Notes of Hope for January

The Empty Seat in the Room:
A Note from the Program Director

Cristin’s passing

A few weeks back, one of our young-adult members, Cristin Terwilliger, was interviewed for the featured Notes of Hope story. The piece focused on the decision she made to handle her treatment after being diagnosed with Ewing sarcoma. Sadly, before it was published, the 27-year-old died.

As the news of this loss travelled through our center, the staff, instructors, and I shared our sadness. But as we process this grief, we are also faced with the challenge of carrying on for the rest of the group. How do we honor the one who is gone, and sensitively respond to those who need us at the same time? How do we acknowledge the empty seat in the room?

Professionally, we temporarily may put our own feelings aside in order to be present for other survivors and caregivers in their grief. But we have personal reactions as well. We don’t claim to feel the loss exactly the way in which our members do. They have to incorporate each loss and reflect on their own mortality. They continue to reach for hope as they recognize how unpredictable and fragile life can be. As instructors, we witness this process and weave the high points together with the low. 

But we are not untouched by the impact of death. We share a respect for life, and acknowledge a special appreciation for time. Each person’s uniqueness is remembered and imprinted on us. Sometimes we have the opportunity to acknowledge these remembrances during a gathering with our members. At those times, although we may be looked upon to lead the class, we, too, benefit from participating in the group process. This makes our community different from other places that may not allow such mutual experiences to flourish. There is a togetherness at our center--where members, volunteers, and staff are able to express and feel what happens here. And we can do that together to help one another grow, learn, and heal. 

Jen Sinclair, program director


Really, Really Relevant

Making greater progress against cancer—not just a hope but a reality (National Cancer Institute, 4/21/17)

Hello from the Exec Director
Put the past behind you (in a good way), and deliver gently used items to the Boutique at the Rink.

I bent down and plucked a weed from my garden. Then, I pushed away some mulch so a green leaf could see its new world. And, finally, I scooped up a handful of last year’s dried oak leaves and tossed them in the compost heap.

Just as we tidy up our gardens each spring, we tend to do some indoor tidying, too. This is the month we look at things we haven’t worn or used in a while, including those that were once meaningful to us, but no longer fit our frame of mind. But these things could benefit someone else perfectly. 

Here’s a terrific way you can “spring clean": Bring your gently used clothes and household goods to the Boutique at the Rink--a sale that benefits three great cancer-related community organizations, allows people to buy excellent items at wonderful prices, and helps clear out overflowing shelves.

Check out the Boutique’s website for information about accepted donations and ways to volunteer or call us at 610-861-7555, ext. 29.

Amanda Buss, executive director

Hey, volunteers…
Got some time for us?

Host our information tables at

-6th Annual Nazareth Bike Fest-Sat., May 13
Downtown Nazareth shifts: 1-3 pm, 3-5 pm,  5-7 pm

-Crayola Health & Safety Fair
Tues., June 13: South Bethlehem shifts: noon-5 pm
Wed., June 14: Forks/Easton shifts: 7-9 am, 11 am-1 pm, 1-3 pm 3-5 pm

Contact Deb Post or 610-861-7555 ext. 39

Working Out
Most studies show exercise reduces the incidence of many cancers, and, after diagnosis, may improve survivorship and quality of life. For more: National Cancer Institute

Before you start exercising, make sure your healthcare provider gives you medical clearance. Once you have received clearance, design a plan that you enjoy and won’t cause an injury or aggravate an old one.

Before the coffee: seven gentle in-bed yoga poses.

Dishing It Out
Eating right before, during, and after cancer treatment can help you feel better and stay stronger. For more: National Cancer Institute

May recipes from Prevention Magazine.
Make spring sing.

Turkey Meatloaf with Walnuts and Sage

Chocolate-Cranberry Quesadilla

Did You See This?
Links to important news about cancer.

New Guidelines for Prostate Cancer Screening (CBS News, 4/11/17)

On the Lookout
What's coming up.

Crazy about good food--especially when celebrity chefs make it? Come to Chefs for the Cure-May 7 (Marianna’s, Phillipsburg, NJ) SOON!

Skin Cancer Awareness Month.  Ironically, sunny days are serious days.

Keep your skin safe during these outdoor months

Families, come to our Sun Safety workshop-May 4, 6 pm (CSC offices)

Melanoma survivors, join the lunch-and-learn webinar, “Frankly Speaking About: Immunotherapy Advances in Melanoma"- May 18, 11 am

Melanoma Conferences 

Melanoma Research Foundation Patient Symposium-May 12 (Philadelphia)

Melanoma Community Forum at Lehigh Valley Health Network-May 18 (Allentown)

Brain Tumor Advocacy Training

National Brain Tumor Society's "Head to the Hill" advocacy training-May 8 & 9 (Washington DC)

Helping Out
Will you lend a hand at Boutique at the Rink?

Fight cancer with style: Boutique at the Rink

-The best darn tootin’ way to clean out your shelves: donate May 1-19

-Slip on a pink shirt and volunteer (tons of ways: cashier, bagger, stocker, greeter, etc. etc. etc.)  May 1-June 3

-Shop! Every day differs from the day before: May 30-June 3

Hanging Out
What to watch, read, cook with, or sip.

We love

-watching Better Call Saul (not-scary pre-quel of Breaking Bad)

-reading Free Days with George: Learning Life's Little Lessons from One Very Big Dog

-cooking with Instant Pot (what a pressure cooker!)

-drinking Starbucks’ secret: the Medicine Ball (combo of teas, lemonade, peppermint, honey, and water--said to soothe sore throats, general icks)

Have a tip? Let us know.

Getting By
Tips from other survivors and healthcare professionals to make your journey easier.

Dry Mouth (aka Xerostomia)?

-Chew sugar-free gum or suck on sugar- free hard candies

-Limit caffeine

-Avoid mouthwashes with alcohol

Have a tip? Let us know.


Foundation & Corporate Supporters—thank you for helping us complete our mission:

to ensure that all people impacted by cancer are empowered by knowledge, strengthened by action and sustained by community. We help people affected by cancer actively engage in their health care, connect with others, reduce stress and isolation, and restore hope for a better quality of life.

Foundations & Corporate Sponsors

Air Products

Air Products

Highmark Blue Shield Hospital central Services Ironton Global Lehigh Valley Health Network
Liberty Property Trust PPL Teva Pharmaceutical Industries Ltd. The Hartford
Women's 5K Classic Teva Pharmaceutical Industries Ltd. Teva Pharmaceutical Industries Ltd. Women's 5K Classic  
Andesa Strategies
Blue Star Screen Printing
Buckno Lisicky & Co.
Burkholders HVAC
Fragrance Manufacturing, Inc.
Gillespie Printing
Hogan Social Club of Allentown
Janssen Biotech, Inc.
John A and Margaret Post Foundation
J's Run
Keystone Savings Foundation
Lehigh Valley Community Foundation
Phoebe Ministries
Rea Charitable Trust C/O Wells Fargo
Saucon Valley Country Club
Sylvia Perkin Perpetual Charitable Trust
The Bill Sugra Memorial Fund
The Century Fund
The Charles Hoch Foundation
The Fleming Foundation
Trexler Trust
Trumbower Hospital Foundation, Inc.
Waste Connections Inc.
Weintraub Family Foundation

Society of Hope

John and Shirley Biggar
Marilyn Claire
Eugene and Janice Connell
John Berseth and Carol Dorey
Dan and Jennifer Eck
Shelby Eichenlaub
Ryan Flynn and Rebecca Rij-Flynn
Bernard and Grace Fried
Robert and Susan Gadomski
Sara George
Bruce Getz
James and Eleanor Harbaugh
Cathy Holmes
Todd Holmes
David and Pam Kennedy
Gregory and Camille Llewellyn
Don and Patricia Lockard
Clarence and Suzanne Mason
Daniel and Lucindalea McCarthy
Tom and Nipa Neuhaus
Patricia Oswald
Don and Diana Patt
Douglas and Georgine Patt
Joan Paul
Karen Pell
Dr. Kumar and Aruna Pendurthi
Lance and Deborah Post
J.B. Reilly and Kathleen Waterbury Reilly
Claire and Herman Rij
Jay and Jan Ruhle
James Tanenbaum and Elizabeth Scofield
Michael and Krisann Seislove
W. Cordes and Kim Snyder
John and Sandra Soler
Craig Spitzer and Susan Lee
W. Jay and Paulette Stiver
Charles Tucker
Charles Tuskes
David Yandrasitz

This list begins at the $1,000 support level.