Notes of Hope for June

Rare. But beware:

July is Sarcoma Awareness Month

Let's doff our hats to Independence Day.
Deb's Story

“I have never had peace before in my life. I finally found my center….I am a much happier person now because I found me.” ~ Deborah Alexander


Deb’s life was a festival of volunteering and working. When she wasn’t working as a medical technician, she was volunteering for her church’s ministries or for a veterans’ group. She pushed herself to work harder and longer. “I was looking for something. I thought I’d found it.”

She didn’t take even a moment for herself, despite four past hip surgeries on one hip, diabetes, and concerning symptoms in her breast. Caught up in the whirlwind of helping others, she didn’t focus on her own health for two years, until the pain was too difficult to ignore. That’s when she discovered she had stage 2 breast cancer.

Deb’s story continues here.

Really, Really Relevant

Going Flat after Breast Cancer (The New York Times, 11/1/16)

Three Steps to Lower Breast Cancer Risk: Walk, Limit Alcohol, Avoid Weight Gain (American Institute for Cancer Research, 5/31/17)

Notes from the Program Director
I don’t usually advocate selfishness, but we could all could use a little me time. With summer officially in full swing, take advantage of longer days by building in special moments for yourself. It only needs to take a few minutes. Whether you enjoy quiet meditation and peaceful walks, or music with windows rolled down and lively interaction, treat yourself to a healthy activity that means something to you.    

Need ideas? We can help:

 · Join us for the movie, Happy, a 2011 documentary that moves from the slums of Louisiana to Kolkata, India to explore what really makes people happy, our most valued emotion. July 20 at 12 pm  

 · Make a splash at our children and teen retreat at Dutch Springs on July 21 at 9 am

 · Walk with us at Trexler Park on July 24 at 10 am 

Have fun!

Jen Sinclair, program director


p.s. Watch this clip from the documentary True North, following the remarkable Sean Swarner as he aims to be the first cancer survivor to complete the Grand Slam and also reach the North Pole to post a flag with 2,000 cancer survivors’ names. (One of our weekly group members has his name on it!)  “You can go to the ends of the earth to give people hope,” says Swarner.

Hello from the Exec Director
Now that summer is here, the routine at our house has changed, and I find myself mulling over ideas that I often don't have time to think about. 

I recently read an obituary about a doctor who passed away from uterine cancer. Dr. Amy J. Reed’s story is sad, but it’s also invigorating, because it’s the story of a woman who not only fought hard against the cancer that was spread by a power morcellator, but then fought hard against the establishment’s hospital and doctors (all Harvard), and gathered the names and histories of women whose cancer had spread after morcellation. Her efforts led to the FDA virtually banning this procedure.

Click here to read the piece.

WOW! Right?

The story made me think about the power we can hold when we put our minds to something. I thought back through my life, and now more recently, my cancer journey.  Ever since my initial cancer diagnosis 11 years ago, I learned that I had to become my best advocate. There were times when I felt as if I were calling the doctor’s office 10 times a day or requesting too many tests to make sure that pain in my left side wasn’t another tumor.

We, as cancer patients, put so much trust in our doctors, the FDA, and the latest and greatest “cure” for cancer that we need to stop and evaluate what we’re being told. And we need to fight for what we think is right for us—and, in this case, for others.

Amanda Buss, executive director

Dishing It Out
Eating right before, during, and after cancer treatment can help you feel better and stay stronger. For more: National Cancer Institute

July recipes from Prevention Magazine
Not too late to jump on the kale train.

Skillet Tilapia with Black Beans and Kale

Ginger-Peachy Cobbler

Did You See This?
Links to important news about cancer.

New Cancer Drug Effective Against Multiple Tumors (The New York Times, 6/9/17)

Metastatic Breast Cancer Survivors Are Living Longer, but Incidence is Increasing (The New York Times, 6/5/17)

Getting By
Tips from other survivors and healthcare professionals to make your journey easier.

The Beginning’s Guide to Humor and Healing by Dr. Bernie Siegel

Toothpaste irritating you? Try

-Baking soda

-Herbal tooth powders

Have a tip? Let us know.

On the Lookout
What's coming up.

The clue is the pink firetruck. Pink Heals National Tour…Drink, eat, buy-July 14, 3-8 pm (Taps Tavern, 3731 Rt. 378, Bethlehem)

Butterflies, kids’ stuff, and other things make this unbelievably special. Wings of Hope-Sept. 9 (Butterfly Garden, Cedar Crest College, Allentown, 10:30-12)

Professionals, Consider this Conference:

Best of ASCO–July 14-15 (Boston)

Helping Out
Will you lend a hand?

We worked up a summer sweat, and could really use some lemons, cukes, limes, or oranges and bags of ice so we can make infused water for participants. Thanks!

Working Out
Most studies show exercise reduces the incidence of many cancers, and, after diagnosis, may improve survivorship and quality of life. For more: National Cancer Institute

Before you start exercising, make sure your healthcare provider gives you medical clearance. Once you have received clearance, design a plan that you enjoy and won’t cause an injury or aggravate an old one.

Avoid Spills (We’re Not Talking about Milk) : Eight Ways to Improve Your Balance

Hanging Out
What to watch, read, and craft

We love

-watching Anne with an E (charming new version of Anne of Green Gables)

-reading Into the Water by Paula Hawkins (wrote the gripping The Girl on the Train)

-Re-vamping terra-cotta pots

Have a tip? Let us know.

Foundation & Corporate Supporters—thank you for helping us complete our mission:

to ensure that all people impacted by cancer are empowered by knowledge, strengthened by action and sustained by community. We help people affected by cancer actively engage in their health care, connect with others, reduce stress and isolation, and restore hope for a better quality of life.

Foundations & Corporate Sponsors

Air Products

Air Products
Highmark Blue Shield
Hospital central Services Ironton Global Lehigh Valley Health Network Liberty Property Trust
The Hartford Women's 5K Classic Teva Pharmaceutical Industries Ltd. Teva Pharmaceutical Industries Ltd.
Women's 5K Classic          
Andesa Strategies
Blue Star Screen Printing
Buckno Lisicky & Co.
Burkholders HVAC
Charles B. Patt, Jr. Memorial Golf Tournament
Fragrance Manufacturing, Inc.
Gillespie Printing
Hogan Social Club of Allentown
Janssen Biotech, Inc.
John A and Margaret Post Foundation
J's Run
Keystone Savings Foundation
Phoebe Ministries
Rea Charitable Trust C/O Wells Fargo
Rij Family
Saucon Valley Country Club
Sylvia Perkin Perpetual Charitable Trust
The Bill Sugra Memorial Fund
The Century Fund
The Charles Hoch Foundation
The Fleming Foundation
Trexler Trust
Trumbower Hospital Foundation, Inc.
Waste Connections Inc.
Weintraub Family Foundation

Society of Hope

John and Shirley Biggar
Malcolm and Rebecca Briggs
Dean Browning
Robert Cawley
Marilyn Claire
Eugene and Janice Connell
Stewart Davis
John Berseth and Carol Dorey
Dan and Jennifer Eck
Shelby Eichenlaub
Bernard and Grace Fried
Robert and Susan Gadomski
Sara George
Bruce Getz
Cathy Holmes
David and Pam Kennedy
Don and Patricia Lockard
Clarence Mason
Daniel and Lucindalea McCarthy
Shawn Pail
Don and Diana Patt
Douglas and Georgine Patt
Joan Paul
Karen Pell
Dr. Kumar and Aruna Pendurthi
J.B. Reilly and Kathleen Waterbury Reilly
Claire and Herman Rij
Jay and Jan Ruhle
James Tanenbaum and Elizabeth Scofield
Michael and Krisann Seislove
W. Cordes and Kim Snyder
Craig Spitzer and Susan Lee
W. Jay and Paulette Stiver
Ralph Teti
Charles Tuskes
Bruce Waldman

This list begins at the $1,000 support level.